The impact of a rare disease program on the Melbourne Children’s campus

Rare Diseases Now (RDNow) was established in 2019 with funding from The Royal Children’s Hospital Foundation to provide an advanced, clinically integrated diagnostic pathway for children with rare diseases (RD). We have delivered value to children and families by providing access to frontier multi-omics technologies, working on solutions to optimise rare disease care and upskilling the workforce.  In this Grand Round we will describe the impact of our work at the individual, team and national levels and show how the Melbourne Children’s Campus is positioned as a global leader in rare disease care.​

Every child in every community needs a fair go

This Grand Round, in the lead up to Child Protection Week 3-9th September, will focus on how as a health service we can identify children who are at risk of missing out on essential medical care. Each year at RCH thousands of health care encounters are missed when children and young people are not brought for scheduled appointments. For some children this can lead to harm, and rarely even have fatal consequences. As a health service we need to consider what the impacts are for these children and be aware of our role in reducing the risk of harm in this vulnerable group.  

Equity research in Paediatric care: Challenges and opportunities

Unconscious bias can play a role in both clinical care and patient experiences.  Determining the presence and magnitude of inequity can be methodologically challenging in children’s research.  This presentation will frame opportunities to investigate and address inequities through the lens of improvement science using patient safety as a model.

What happened when we invited design students into the PICU

We are all problem solvers. We are accustomed to applying the scientific method and quality improvement models to deliver better care. Design thinking is an approach to solving problems that emphasizes a human-centred and iterative process to create innovative solutions. Six years ago, we invited design students into the PICU to see if we could find better ways of teaching congenital heart disease. This is the story of that journey.

reNEW: Transforming lives with stem cell medicine

Scientific advances now allow researchers to identify, isolate and engineer stem cells. reNEW aims to deliver treatment outcomes across the breadth of stem cell medicine – new drugs based on human stem cell models, new tissue therapies, and new cell and gene therapies. We look forward to presenting how stem cell medicine and reNEW are advancing treatments for delivery into the clinic across many currently untreatable diseases.

NAIDOC Week – For Our Elders: celebrating the valuable contribution of Elders in the work of the Melbourne Children’s Campus

This year’s NAIDOC Week Theme, ‘For Our Elders’ celebrates the valuable contribution of Aboriginal and Torres Strait Islander Elders in all areas of Australia. Please join Melbourne Children’s Campus leaders in Aboriginal and Torres Islander healthcare in a panel discussion about the crucial role that Elders play in our services, programs, care and research. The panel aims to acknowledge and celebrate the often hidden guidance, influence and advocacy of Elders in health.

Mentally healthy primary schools: A state-wide initiative to increase the capacity of schools to support children

In recent years there has been increasing policy attention paid to child mental health, at a state and national level, given the marked increase in mental health problems in children. In addition to causing distress for children and families, when mental health difficulties are not addressed in a timely way, they can become entrenched and have serious effects into adult life.

Racism and child and youth health: The public health crisis we can no longer ignore

Racism as a fundamental cause of health and health inequalities is increasingly recognised as a major public health crisis, echoing what First Nations peoples have been saying since colonisation. There is growing empirical evidence of the multiple ways in which racism impacts health and wellbeing for children and young people.