The Melbourne Children’s Campus is seeing an increase in the number of clinical trials of gene therapies, especially in vivo viral vector therapies. With some of these therapies now approved by the TGA, there is an expectation by families that these therapies will be available at the Children’s.
In recognition of Allied Health Professions Day on 14 October 2021, RCH is excited to extend the celebrations across the entire week of 11-15th October. Allied Health Professions Day first began in the UK in 2018 and has since become an international event to recognise and celebrate the Allied Health Professional community.
The Vernon Collins Oration was established in 1981, in memory of Professor Vernon Collins, the first Medical Director of The Royal Children’s Hospital, Melbourne. Vernon Collins held this position from 1949 to 1960 and then became the first Professor of Child Health in the University of Melbourne, before retiring in 1974. The 2021 Vernon Collins Oration will be delivered by Professor Lynn Gillam AM, an experienced clinical ethicist and Academic Director of the Children’s Bioethics Centre at The Royal Children’s Hospital.
The long-term outcomes of acute kidney injury are an area of increasing interest, with epidemiological studies reporting a significantly increased long-term risk of chronic kidney disease, hypertension, dialysis dependence, and death following an episode of acute kidney injury.
“Vaccine inequity – The world is on the brink of a catastrophic moral failure, and the price of this failure will be paid with lives and livelihoods in the world’s poorest countries.”
Dr Tedros Adhanom Ghebreyesus, WHO Director-General.
The availability of effective vaccines for the prevention of covid-19 has led to an unseemly competition as countries rushed to sign deals with manufacturers, often outbidding each other for access, to the exclusion of poorer countries. In high income countries 60% of people have received at least one dose of Covid vaccine, while in low income countries the figure is 3%.
We have a National Roadmap, which includes COVID-19 vaccine coverage targets for the easing of restrictions. But how do children and adolescents fit into this, with regard the direct and indirect effects of Delta on their health and well-being?
This plenary session is named in honour of the recent Clinical Director of the Centre for Bioethics, A/Prof Jill Sewell. Professor Douglas Diekema will open the National Paediatric Bioethics Conference by considering the ethical underpinning of our conference theme, ‘Deciding with Children’. Deciding with Children is more than a vague abstraction or aspirational goal of children’s healthcare workers. Prof Diekema will demonstrate that Deciding with Children matters to the well-being of children and is a vital part of healthcare delivery. He will build on this foundation, using his clinical experience, to consider how best to authentically involve children in healthcare decisions.
The last 3 decades has seen major advances in neonatal intensive care – this has led to increased survival in our tiniest and most immature newborns. The CRE in Newborn Medicine is in its 13th year, supporting new initiatives to improve how we care for our newborn babies. This presentation highlights the innovative work that is happening in newborn research.
Reproductive carrier screening has been possible since the 1970s. Initially conducted by testing of blood analytes for carrier status for haemoglobinopathies and Tay Sachs disease, screening for an ever increasing number of conditions became possible by genetic testing from the late 1980s. The advent of genomic sequencing means that it is now possible to screen over 1000 genes, a process called expanded carrier screening.
Is long-term parenteral nutrition (LTPN) a step too far for children with severe neurological impairment (SNI)? Children with SNI are living longer and experiencing more gastrointestinal issues. However, clinicians remain hesitant to consider LTPN when enteral feeding fails in these patients.