Rare Disease Day
Today on Rare Disease Day, two amazing families share their journey with rare disease.
Today on Rare Disease Day, two amazing families share their journey with rare disease.
Two year old Riley Twomey loves to play, but the slightest bump or bruise could cause him a life-threatening injury.
The results of the latest Royal Children’s Hospital (RCH) Patient and Family Satisfaction Survey are now in.
Dr Ngaire Elwood is a former patient at the RCH and a current staff member at the Murdoch Childrens Research Institute. In this blog she pays tribute to her former doctors who, decades later, became her colleagues.
Christina was born with multiple life-threatening medical conditions and wasn’t expected to live to see her third birthday. Now 15-years-old this courageous teenager has beaten the odds countless times.
Truly personalised healthcare is one step closer to becoming a reality with the launch of the Melbourne Genomics Health Alliance.
Victoria has experienced an influx of asylum seeker children with significant health needs. The RCH has been working proactively – and thinking outside the square – to manage and promote the health of refugee children and families.
In July 2012 14-year-old Corey, a talented footballer, headed off to a weekend AFL match with his dad. That afternoon he was being rushed to the RCH after suffering an AVM and stroke.
Single rooms provide patients and families added privacy and space during their stay at the RCH, but it’s the added extras patients don’t receive that also improve their experience in hospital.
To anyone who knows and loves him four-year-old Casper is known as ‘Casper the Great’, and it’s no wonder. Read his inspiring story in this blog.