Rare diseases are a leading cause of infant mortality and lifelong disability in high income countries. Incorporating genomic sequencing into newborn screening programs raises the prospect of being able to detect hundreds of early-onset, severe, but treatable genetic conditions at birth, potentially improving clinical outcomes, with genomic data stored to benefit health over lifetime and support further research
In recognition of Allied Health Professions Day 2023, this year’s RCH Allied Health Grand Round explores future opportunities for Allied Health to harness and build upon digital learning and capability in the delivery of high-quality patient care. Going beyond the electronic medical record, our line-up of expert presenters will highlight the scope of digital health possibilities within allied health practice with a key focus on the themes of collaboration and co-design, audience reach and sustainability.
Our Healthy Trajectories research is done in partnership with consumers, clinicians, and researchers with diverse disciplinary expertise. Our goal is to contribute evidence to rapidly improve the health, wellbeing, and participation of those with child-onset disability and their families. We will only be able to ensure that people with disability can participate as equal members of society if we collaborate effectively across disciplines and sectors: we invite your involvement.
Interested in combining research with your clinical work? This Grand Round features clinician scientists from the Department of General Medicine. You will hear about their diverse career pathways and research programs, as well as how they balance research with their clinical work and other commitments.
Launched in June of 2021, the Centre for Health Analytics has now been operational for a year. With a vision to unleash the power of data to improve child and adolescent health, the Centre will share some early successes and show how we’re aligned to similar initiatives in the NHS. This presentation will spark new ideas of how to use data, and provide insights into how best to engage with the Centre for Health Analytics to deliver high value data rich work.
Speaker
Professor Jim Buttery is a paediatric infectious diseases physician and vaccinologist. He is the inaugural Professor of Child Health Informatics at the University of Melbourne. He is Head of Health Informatics, Epidemiology and Signal detection at SAEFVIC (MCRI) and Chief Clinical Research Information Officer & Infectious Diseases Physician at The Royal Children’s Hospital (RCH). Prof Buttery also serves as a member of the TGA Advisory Committee on Vaccines.
The Australian healthcare system is a significant contributor to climate change through its own carbon footprint, which is estimated to be 7% of Australia’s total carbon emissions. National and international peak health organisations are urging healthcare sectors to decrease their emissions as quickly as possible, in order to uphold our core mission to sustain health and our responsibility to first do no harm.
Over recent years the number of children with advanced heart failure from cardiomyopathy and congenital heart disease receiving treatment has increased considerably. The Royal Children’s Hospital has been the nationally funded centre for heart transplantation in children for 30 years. The RCH heart failure program involves medical, surgical, nursing, allied health and biomedical technology. Successful management of severe heart disease in children requires a detailed understanding of the aetiology, likely disease trajectory and balancing an increasing number of treatment options.
Ms Jacquie O’Brien, is the CEO of Tweddle Child and Family Health Services, a statewide early parenting intervention and prevention health service and public hospital. Jacquie will be speaking on trauma-informed care and developing integrated models of care with early parenting services. Ms O’Brien will describe, using case studies and experience, how working in an integrated way across health services can lead to better outcomes for all.
The Consultative Council on Obstetric and Paediatric Mortality and Morbidity (CCOPMM) monitors the causes and factors involved in all child deaths throughout Victoria, and provides recommendations to Government, health care professionals and the community. In recent years the Council has identified the social and economic gradient in risk of child deaths, which includes virtually all causes, from accidental trauma, drowning, SIDS, infections and chronic illnesses. The Council has long recommended improvements in the systems for provision of child welfare and support to families who are vulnerable, especially families of children with chronic illness, and these needs are magnified in the COVID-19 pandemic era.
Currently in Australia, children as young as 10 years old can be arrested, held in police cells, taken before a magistrate and incarcerated in prison-like settings. Most children who are incarcerated are never convicted of a crime.
