Moral distress is a pervasive phenomenon in healthcare and contributes to healthcare worker burnout, turnover, and withdrawal from patient care. Moral distress can arise due to morally troubling everyday ethics issues or clinical cases we carry with us.
The STRONG kids, STRONG future team from the University of Melbourne’s Department of Paediatrics works in partnership with Aboriginal and Torres Strait Islander families, communities, and organisations to research, develop and implement culturally responsive tools that enhance developmental outcomes for young Aboriginal and Torres Strait Islander children. The STRONG kids, STRONG future team is excited to co-present with key partners from Aboriginal Community Controlled Organisations our approach to advancing children’s health. We will describe how we have co-developed culturally responsive developmental instruments for Aboriginal and Torres Strait Islander children. We will hear from our partners who will share their experience of collaborating on research projects, the importance of culturally responsive tools, implementation of these instruments in their settings and what works in partnerships with Aboriginal and Torres Strait Islander communities.
Arguably, the most important developmental outcome of childhood and adolescence is to grow a good brain. A stable supply of glucose is sine qua non for optimal brain development. Type 1 diabetes (T1D) is the exemplar chronic condition of childhood that disrupts blood and tissue glucose delivery. Thus, the assessment of cognitive, psychological, functional and morphological brain outcomes in T1D is apposite.
Join us for a dynamic presentation showcasing the transformative journey of the Clinical Data Champion program at the Centre for Health Analytics (CHA). Led by Professor Jim Buttery and including Data Champions Katherine Frayman and Ann Le, and CHA Director Ross McKenzie, we’ll explore the program’s inception, evolution, and sustainability efforts.
Join us for a panel discussion to explore how integrating the voices of children and their parents can transform the work we do in mental health. We will share our projects and insights, emphasising the impact of lived experience on the supports and resources we create. We will discuss practical insights for supporting lived experience in research, knowledge translation and clinical practice and challenge current assumptions to reshape mental health resources and how they are created.
Globally, we face many common challenges. Yet how do we address these in different health contexts to ensure that the right care reaches those who need it the most, in the right way? Decentralisation, localisation, “glocalisation”…many labels been applied to approaches, and debate ensues about which approach is “right”. Yet the aim is common – best care, best outcomes, everywhere.
In 2023, Dr Mariam Tokhi and Dr Fiona Reilly launched Australia’s first Narrative Medicine course at the University of Melbourne, teaching medical students. In this Grand Round, they will share the vision they have for integrating Narrative Medicine skills into the worlds of university education as well as community and hospital medicine.
Olivia is a 14-year-old girl from rural NSW who was diagnosed with Pre B Acute Lymphoblastic Leukemia (ALL). The treatment is long and arduous, but if treated immediately has a 90 percent survival rate. Without treatment she will die within four weeks. Olivia has other conditions including epileptic encephalopathy (DEE), a severe intellectual disability, global developmental delay, communication difficulties, drug-resistant seizures and behavioural difficulties. The cancer therapy would require Olivia to have over 50 general anaesthetics as she won’t accept treatment without being restrained.
The Royal Children’s Hospital had over 7000 interactions with Aboriginal children and families last year. Wadja Aboriginal Family Place Case Managers provide culturally sensitive support and care coordination to Aboriginal and Torres Strait families attending the hospital, either as inpatients or outpatients.
Over the past 15 years, the treatment of genetic skeletal disorders has evolved from purely symptomatic, to the emergence of several precision therapies that promise to change the health outcomes of children affected by these conditions. We have led this knowledge transformation, enabled and fueled by the genomics revolution. This Grand Round will update the progress on the precision treatment of genetic skeletal disorders that sets a template for the better treatment of many other rare genetic conditions.
