In children, mastocytosis most commonly affects the skin. However for young people like Tayla with the much rarer systemic mastocytosis, mast cells gather in different parts of the body, affecting internal organs, bone marrow and digestive tract. Read her story here.

20 October 2023.

15 October is Pregnancy and Infant Loss Remembrance Day, a day to promote greater awareness and support for families whose lives have been impacted by the loss of a child during pregnancy, at birth or in infancy. Families just like Renee’s.

13 October 2023.

Like Jess’s, the Butterfly team want to hear from families with lived experience to partner with them and help improve the NICU experience at the RCH. Click here to learn about Jess and Jack’s story and how you can get involved.

3 October 2023.