In the last decade, we have seen genetic therapies leap from the benchtop into the neuromuscular clinic. This process is most dramatically illustrated by spinal muscular atrophy (SMA), which was until recently the most common genetic cause of death in infancy.
In this age of subspecialisation, effective communication and collaboration is key. How do we improve the care of children with head and neck conditions? Head & Neck Surgery is an established subspecialty within Otorhinolaryngology globally. Here at RCH, The University of Melbourne & MCRI, we are navigating the ever-changing complexity and diversity of congenital, acquired and neoplastic head and neck conditions.
Opportunities exist to leverage implementation science and quality improvement science to advance quality care. During this presentation we will compare and contrast implementation science and quality improvement science. We will explore how methods from both fields have been used to improve our understanding of discharge communication practices in emergency departments in Canada.
Genomic medicine is rapidly evolving, yet many clinicians outside of clinical genetics face challenges in integrating these advances into routine practice. In this Grand Round, Associate Professor Catherine Quinlan explores her journey mainstreaming genomics in paediatric nephrology, using real-world data from Australia and Ireland and its implementation at The Royal Children’s Hospital.
Healthy Trajectories is proud to bring a celebration of the International Day of People with Disability (IDPwD) to Grand Rounds at The Royal Children’s Hospital. In line with our vision for an inclusive Australia, we will share what we and others around the Campus have been doing to authentically involve young people growing up with a disability, and their families, as partners in research.
Medical oxygen has been around for more than 200 years. It is a life-saving treatment we take for granted. Sadly this is not the case globally. The COVID-19 pandemic brought to the surface long-standing deficiencies. Images of patients gasping for oxygen reminded us that even today, 70% of patients who need oxygen globally do not receive it. How do we understand the different facets of this problem, and what can we do about it?
Shared decision-making is recognised as ethical best practice in making health care decisions for children. But translating ethical ideals into practice is never straightforward. Shared decision-making can run into practical and ethical complications.
Allied Health Professions Day is recognised internationally on the 14th October. To celebrate, this Grand Round will showcase the great work of our RCH Allied health teams. The Executive Director of Ambulatory Services and Chief Allied Health Officer Doug McCaskie will commence proceedings, followed by a panel of Allied health clinicians who will showcase how their current work builds capacity and changes the lives of our patients, their families and the community.
The Victorian Paediatric Clinical Network (VPCN) was formed in 2009 and has been through several iterations, before being closed by Safer Care Victoria at the end of 2022. In 2023 it was reformed by the paediatric sector in recognition of the significant role a clinical network has in improving the care of children across the State.
There has never been a better time for children in the Australian policy world, with portfolios like health, social services, education, disability and treasury all sounding the importance of children for the nation’s wellbeing and growth. At the same time, almost every child health and developmental metric shows stable or growing inequities –preventable inequalities due to social, geographic or economic circumstances. What would it take to change the trajectory of Australia’s children and is it even possible?
