Putting the “community” into community child health: 25 years of CCCH

For the last quarter of a century the Centre for Community Child Health has been working with families, communities and government to improve outcomes of all children by focusing on how to provide great care everywhere. This has included clinical services through to place-based service innovation across health and education.

Generation Victoria (GenV) Solving complex issues affecting children and adults – a whole-of-state cohort with whole-of-campus implications

GenV’s vision is to help solve complex issues affecting today’s children and adults through an entire Australian state becoming a single platform that enhances research speed, capacity and translation. Led from the Melbourne Children’s Campus, the GenV Cohort will be open to the families of all 170,000 Victorian newborns over 2021-2. At its foundation are consent; existing geospatial, clinical and administrative data; biosamples; GenV-specific data; and melding observational and intervention design

Global health, the Australian government aid program and the triple transition

Widening health inequities, emerging disease threats, and shortfalls in financing for health are challenging the gains made in global health over the past 20 years.  Many countries face a ‘triple transition’: Epidemiologically –  from infectious to chronic diseases; Financially – from donor to domestic financing of health, and Structurally – as health systems reorganise to achieve universal health coverage.  Dr Stephanie Williams will provide an overview of Australia’s global health contribution with practical examples of how the aid program is adapting to these changes.

Patient Reported Outcomes in children’s health services: why should we use them and how can they be embedded in Epic?

Patient Reported Outcomes (PRO) have been used for decades in clinical trials, observational studies, population health surveys, and for estimates of quality of life in economic evaluations. However, the use of PROs as part of routine measurement in clinical settings is relatively new.  In this Grand Round, 3 speakers will discuss the use of PROs in the UK, in mental health at RCH and integrating PROs into the EMR.

Crowd-funding and other social media use by families

One of the growing worldwide challenges in paediatric health care is how to understand and respond to some of the many ways in which families of sick children use social media. This presentation draws together a number of strands of thought from my recent sabbatical in the UK, where the paediatric hospital staff are still experiencing the flow-on effects of the high-profile (and high-conflict) social media campaigns run by parents of Charlie Gard and Alfie Evans. I will present some data from two recent studies of how families in UK and Australia use social media, especially crowd-funding, and then raise for discussion some of the ethical and social challenges arising from social media use.