Please join us for a thought-provoking International Women’s Day (IWD) Grand Round panel discussion with four exceptional women. As we continue to strive for gender equality and economic empowerment for women and girls, we will explore how best to invest in women and promote women in leadership, taking into account the impacts of the pandemic, with a focus on storytelling and learning from each other.
Childhood dementia is a collective term for over 100 neurodegenerative disorders that begin in childhood or adolescence, each marked by progressive cognitive decline. Most are rare or ultra-rare monogenic disorders with a combined birth frequency estimated at greater than 1 in 2,900 births. Despite their significant impact, fewer than 5% of these conditions have effective treatments and Australian health systems face significant challenges in meeting the complex and critical needs of affected patients and their families.
It is common for young people to present with physical symptoms that cannot be adequately explained by an “organic medical” illness. In the past, there have been inconsistencies in terminology and treatment approaches for these presentations, partly because of the stigma that suggests they are less “real” than an identified organic medical illness.
Reproductive carrier screening involves testing individuals to identify risk of having children with autosomal an X linked recessive conditions.
The discovery of rotavirus as the most common cause of acute dehydrating diarrhea at the Royal Children’s Hospital and University of Melbourne in 1973 provided hope for prevention of a major cause of death in young children worldwide. Building from this discovery, MCRI researchers have dedicated 5 decades to understanding the rotavirus and to the development and implementation of rotavirus vaccines.
This Grand Round highlights the experience of people with disability in healthcare. Drawing on her own journey and patient stories, Hannah explores the barriers created by inaccessible communication and bias, and the impact these have on wellbeing.
Children with developmental disabilities often present to hospital with behaviours of concern, creating complex challenges for emergency departments, inpatient units, and community teams. These behavioural crises can be distressing for patients, families and staff, and can strain hospital resources – yet they also offer powerful opportunities for system change.
Professor Kim Mulholland will draw on four decades of working with the World Health Organization, and discuss the state of global health for children, and where it may go in the future.
Outcomes for patients with Cystic Fibrosis have improved dramatically over the years. The CF Team will share some of the quality improvement work that has resulted in significant improvements in outcomes for these patients at RCH.
Significant time, effort and resources are spent developing rigorous evidence-based health care guidelines. Unfortunately, not enough of these endeavours result in patient benefit. Implementation science, the study of methods to promote the systematic, widespread uptake of research findings and evidence-based practices into routine care to improve health outcomes, offers an approach to optimise the uptake of evidence-based practice.
