Neurodevelopment

Taking a lifelong perspective on Cerebral Palsy: Challenges and opportunities

Emma Livingstone, CEO of UP – The Adult Cerebral Palsy Movement, will share insights from her lived experience and advocacy work on the evolving care and understanding of cerebral palsy (CP) across the lifespan. Her presentation will explore recent research advancements, the lifelong nature of CP, and the importance of addressing co-morbidities. She will also discuss how child practitioners can better equip children with CP for adulthood.

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Parental refusal of treatment for leukaemia – When courts decide

Olivia is a 14-year-old girl from rural NSW who was diagnosed with Pre B Acute Lymphoblastic Leukemia (ALL).  The treatment is long and arduous, but if treated immediately has a 90 percent survival rate. Without treatment she will die within four weeks. Olivia has other conditions including epileptic encephalopathy (DEE), a severe intellectual disability, global developmental delay, communication difficulties, drug-resistant seizures and behavioural difficulties. The cancer therapy would require Olivia to have over 50 general anaesthetics as she won’t accept treatment without being restrained.  

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Exploring the role of rehabilitation services in the management of Functional Neurological Disorders

The approach and attitude towards Functional Neurological Disorders (FND) has changed over the last decade and anecdotally at least, we seem to be seeing more cases in our day-to-day practice.  Patients with functional symptoms present to many disciplines and functional symptoms can co-exist with organic pathology. There is now evidence to show earlier diagnosis and treatment can lead to more positive outcomes.   

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Reddihough Symposium: Disability care in 2023

What does disability care for children and young people look like in 2023, and what could it be like in the future? In 2023 it is more holistic, more funded, more early intervention, more complex, and more positive for children and their families.

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30 years of Musculoskeletal Research in Cerebral Palsy: From Melbourne to Basel and Boston (and back!)

In three parts, this Grand Round intends to describe the significant developments in the management of musculoskeletal conditions associated with cerebral palsy. First, the critical role that the Victorian Cerebral Palsy Register (VCPR) has played in epidemiological research, clinical research, and public health policy will be outlined. The second section will discuss technical developments in the management of Neuromuscular Hip Dysplasia, including novel imaging techniques and new aids for surgeons when considering surgical treatment. The final section will focus on common gait problems in children with cerebral palsy, as well as novel treatment concepts

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Medicines for ADHD: They work, but are they safe?

Meta-analyses show that medication is an effective treatment pathway in children and adolescents diagnosed with ADHD. These medications are also commonly associated with a number of side effects and risk factors for other conditions, which are less well understood by practitioners. This Grand Round intends to balance understanding of the efficacy of ADHD medication with the potential risks, and provide evidence for the safety of ADHD medication prescription in clinical practice.

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Healthy Trajectories: A Child and Youth Disability Research Hub

Our Healthy Trajectories research is done in partnership with consumers, clinicians, and researchers with diverse disciplinary expertise. Our goal is to contribute evidence to rapidly improve the health, wellbeing, and participation of those with child-onset disability and their families. We will only be able to ensure that people with disability can participate as equal members of society if we collaborate effectively across disciplines and sectors: we invite your involvement.

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