We have a National Roadmap, which includes COVID-19 vaccine coverage targets for the easing of restrictions. But how do children and adolescents fit into this, with regard the direct and indirect effects of Delta on their health and well-being?
Reproductive carrier screening has been possible since the 1970s. Initially conducted by testing of blood analytes for carrier status for haemoglobinopathies and Tay Sachs disease, screening for an ever increasing number of conditions became possible by genetic testing from the late 1980s. The advent of genomic sequencing means that it is now possible to screen over 1000 genes, a process called expanded carrier screening.
Mental Health is an issue of growing concern across the community. This has been amplified through the COVID-19 pandemic. Child mental health is also an ongoing priority for the Melbourne Children’s Campus (MCC) and its three partners. The RCH treats many vulnerable patient groups (e.g., children with chronic illness, neurodevelopmental disorders, psychosocial challenges) with elevated risk of psychological and mental health difficulties. This extends across our inpatient and outpatient services and into the community. Despite this, mental health services can be fragmented and difficult to access.
Tuberculosis is a major cause of child morbidity and mortality globally. Young children are at particular risk of severe and disseminated disease following exposure to a person with tuberculosis. Public health and clinical services, including in Victoria, focus on early detection and treatment of both disease and infection. There have been recent developments that potentially strengthen and decentralise services for tuberculosis.
We are unleashing the power of data to improve child health. The first such Centre in Australia is a hive of potential and ideas, realising the shared vision of our campus partners. We are using data to advance and humanise many different perspectives of paediatric patient care.
Genetic conditions are the leading cause of death in children in high-income countries. Accurate and timely diagnosis is critical for being able to provide prognostic information and guide treatment, yet often takes many years.
Too often research evidence fails to inform practice or policy, and opportunities to improve children’s health and wellbeing are lost. The Melbourne Children’s Knowledge Translation and Research Impact Project, funded by the RCH Foundation, seeks to better understand campus KT and impact needs, and has developed and piloted strategies to advance knowledge translation, implementation and research impact.
Medulloblastoma is the most common malignant brain tumour of childhood. Despite multidisciplinary therapies offered by neurosurgery, radiation oncology and paediatric oncology through cooperative group clinical trials, there are significant late effects of therapy, including but not limited to neuroendocrine deficits, neurocognitive impairment and second malignant neoplasms
The WHO’s World Hearing Day theme on 3rd March 2021 is ‘Hearing care for all: screen, rehabilitate, communicate’. The Royal Children’s Hospital is home to the Victorian Infant Hearing Screening Program (VIHSP) that has been delivering world-class universal hearing screening to Victorian babies for over a decade. Beyond screening, the RCH Audiology Clinic provides diagnostic care, and the Caring for Hearing Impaired Children (CHIC) Clinic delivers a multidisciplinary medical service that intersects with external audiology and early intervention services for hearing-impaired children beyond the hospital. Both VIHSP and CHIC are integrated with a childhood hearing loss research program at the Murdoch Children’s Research Institute to ensure evidence from research informs delivery of the best clinical care.
Advances in health and medical research are accelerating our understanding of disease mechanisms, and leading to new preventative interventions, diagnostic tools and novel therapeutic approaches that are transforming clinical care. Hence, there is an increasing need to better embed clinical research into clinical care delivered at the RCH and to support the development of individuals who are fluent in both clinical care and research.
