Shared decision-making is recognised as ethical best practice in making health care decisions for children. But translating ethical ideals into practice is never straightforward. Shared decision-making can run into practical and ethical complications.
There has never been a better time for children in the Australian policy world, with portfolios like health, social services, education, disability and treasury all sounding the importance of children for the nation’s wellbeing and growth. At the same time, almost every child health and developmental metric shows stable or growing inequities –preventable inequalities due to social, geographic or economic circumstances. What would it take to change the trajectory of Australia’s children and is it even possible?
The gestational age at birth in Australia has slowly but steadily declined over the past 30 years, mainly due to increase in planned births (caesarian sections, inductions of labor). The effects of this decline in gestational age to child health are evident at many levels – intensive care, paediatric care, community, and school.
In this Grand Rounds, Danya and Lynn will show you the different ways that adding qualitative research methods to your project can benefit your research. They will describe different qualitative and mixed method approaches, and guest appearances by RCH and MCRI researchers will provide concrete examples of studies that have been enhanced using these methods. They will also show you step by step how to design a well-rounded project that incorporates qualitative methods.
The application of genomics has greatly increased the diagnosis of specific monogenic causes of intellectual
disability and improved our understanding of the neuronal processes that result in cognitive impairment.
Meanwhile, families are building rare disease communities and seeking disease-specific treatments to change
the trajectory of health and developmental outcomes for their children.
Synopsis Infants undergoing cleft palate surgery at the Royal Children’s Hospital are a unique subgroup. In 2015 Dr Bal Kaur conducted a retrospective audit of pain management of these infants and found substantially high pain and distress reported post operatively. Through a collaborative effort with Dr Geoff Frawley and other stakeholders, a formal quality improvement … Continued
Arguably, the most important developmental outcome of childhood and adolescence is to grow a good brain. A stable supply of glucose is sine qua non for optimal brain development. Type 1 diabetes (T1D) is the exemplar chronic condition of childhood that disrupts blood and tissue glucose delivery. Thus, the assessment of cognitive, psychological, functional and morphological brain outcomes in T1D is apposite.
Join us for a panel discussion to explore how integrating the voices of children and their parents can transform the work we do in mental health. We will share our projects and insights, emphasising the impact of lived experience on the supports and resources we create. We will discuss practical insights for supporting lived experience in research, knowledge translation and clinical practice and challenge current assumptions to reshape mental health resources and how they are created.
In 2023, Dr Mariam Tokhi and Dr Fiona Reilly launched Australia’s first Narrative Medicine course at the University of Melbourne, teaching medical students. In this Grand Round, they will share the vision they have for integrating Narrative Medicine skills into the worlds of university education as well as community and hospital medicine.
Over the past 15 years, the treatment of genetic skeletal disorders has evolved from purely symptomatic, to the emergence of several precision therapies that promise to change the health outcomes of children affected by these conditions. We have led this knowledge transformation, enabled and fueled by the genomics revolution. This Grand Round will update the progress on the precision treatment of genetic skeletal disorders that sets a template for the better treatment of many other rare genetic conditions.
