The Complex Movement Disorders program at the Royal Children’s Hospital commenced in 1997 and has evolved since then. It is currently funded by RCH Foundation and the fundraising efforts of A/Prof Andrew Kornberg’s Fly for the Kids event in 2017. The program allows coordinated multidisciplinary assessment and management of children with movement disorders and associated neurodevelopmental comorbidities.
Interpersonal violence against people with disabilities is a major public health concern. The COVID-19 pandemic and its consequences enhance the already increased risk for abuse among people with disabilities. This Grand Round provides both clinical strategies and a broader call to action for addressing family violence and coercive control against people with disabilities.
Fortunately, COVID-19 in children is generally mild. However, the necessary public health mitigation measures to control community transmission have resulted in many unintended consequences for families and children.
How are Victorian children tracking during the pandemic? What can families do to help their children through these uncertain times? And how are young people with disabilities faring?
Creating a preferred future implies vision, thoughtfulness and actions. It requires knowledge and skills that are developed over time. To craft a future for ourselves or to contribute to the crafting of another’s future, means we need to think and act creatively and thoughtfully.
Seizures are more common in the neonatal period than at any other time of life. Recognition of seizures in the NICU has changed in recent years with the introduction of bedside EEG tools. Increased recognition has raised the sceptre of whether all subclinical seizures need treatment with anticonvulsants.
Optimising the care and management of patients with behaviours of concern is a key priority for the Royal Children’s Hospital. Several departments have now embedded a new model of care introduced in 2016 for adolescents with an intellectual disability and or Autism Spectrum Disorder with mental health concerns. At this Grand Round, we will hear from a parent, a GP and clinicians who will provide insights into the challenges and progress of this important initiative.
This presentation will consider problems encountered when parents and staff disagree on how much control parents should have in medical management, and when they disagree on what is best for a sick child.
Dr Doug Bryan is a paediatrician who has worked at the Royal Children’s Hospital since 1970. During those 48 years the prognosis and life prospects for children with chronic and complex medical conditions have improved dramatically. This has occurred partly from the discovery of new interventions but also in large part to the development of systems of care that specifically focus on the care and needs of these children and their families.
It is now recognized that genetic factors are the major cause of intellectual disability and autism. This presentation will provide an overview of recent advances in our understanding of these genetic factors and the application of new genetic testing technologies to provide an answers for individual families.
Health care recommendations for children with Down syndrome have undergone several significant changes in recent years and it is important for providers to be aware of the current guidelines. Patient examples illustrating some of the critical issues will be used in the presentation and time for general questions will be provided
