Early Births in Australia: Potential Implications for Child Health

The gestational age at birth in Australia has slowly but steadily declined over the past 30 years, mainly due to increase in planned births (caesarian sections, inductions of labor). The effects of this decline in gestational age to child health are evident at many levels – intensive care, paediatric care, community, and school.

Disentangling Perspectives: Moral Distress and Moral Compromise

Moral distress is a pervasive phenomenon in healthcare and contributes to healthcare worker burnout, turnover, and withdrawal from patient care. Moral distress can arise due to morally troubling everyday ethics issues or clinical cases we carry with us.

Reshaping Mental Health Resources: A Collaborative Approach

Join us for a panel discussion to explore how integrating the voices of children and their parents can transform the work we do in mental health. We will share our projects and insights, emphasising the impact of lived experience on the supports and resources we create. We will discuss practical insights for supporting lived experience in research, knowledge translation and clinical practice and challenge current assumptions to reshape mental health resources and how they are created.

Localising efforts to improve care for children in a global world, to reach those in greatest need

Globally, we face many common challenges. Yet how do we address these in different health contexts to ensure that the right care reaches those who need it the most, in the right way? Decentralisation, localisation, “glocalisation”…many labels been applied to approaches, and debate ensues about which approach is “right”. Yet the aim is common – best care, best outcomes, everywhere. 

You could make this place beautiful – Narrative Medicine in a children’s hospital

In 2023, Dr Mariam Tokhi and Dr Fiona Reilly launched Australia’s first Narrative Medicine course at the University of Melbourne, teaching medical students. In this Grand Round, they will share the vision they have for integrating Narrative Medicine skills into the worlds of university education as well as community and hospital medicine. 

Parental refusal of treatment for leukaemia – When courts decide

Olivia is a 14-year-old girl from rural NSW who was diagnosed with Pre B Acute Lymphoblastic Leukemia (ALL).  The treatment is long and arduous, but if treated immediately has a 90 percent survival rate. Without treatment she will die within four weeks. Olivia has other conditions including epileptic encephalopathy (DEE), a severe intellectual disability, global developmental delay, communication difficulties, drug-resistant seizures and behavioural difficulties. The cancer therapy would require Olivia to have over 50 general anaesthetics as she won’t accept treatment without being restrained.  

Aboriginal child health and Out of Home Care in Victoria

The Royal Children’s Hospital had over 7000 interactions with Aboriginal children and families last year.  Wadja Aboriginal Family Place Case Managers provide culturally sensitive support and care coordination to Aboriginal and Torres Strait families attending the hospital, either as inpatients or outpatients. 

The revolution in the treatment of genetic skeletal disorders: precision therapy in practice

Over the past 15 years, the treatment of genetic skeletal disorders has evolved from purely symptomatic, to the emergence of several precision therapies that promise to change the health outcomes of children affected by these conditions. We have led this knowledge transformation, enabled and fueled by the genomics revolution. This Grand Round will update the progress on the precision treatment of genetic skeletal disorders that sets a template for the better treatment of many other rare genetic conditions.