Hopkins Symposium: Childhood Dementia: Empowering unified efforts to address unmet needs
Childhood dementia is a collective term for over 100 neurodegenerative disorders that begin in childhood or adolescence, each marked by progressive cognitive decline. Most are rare or ultra-rare monogenic disorders with a combined birth frequency estimated at greater than 1 in 2,900 births. Despite their significant impact, fewer than 5% of these conditions have effective treatments and Australian health systems face significant challenges in meeting the complex and critical needs of affected patients and their families.
