Monthly Archives: September 2023

VicHip: What makes this clinical registry so powerful?

The Victorian hip dysplasia registry (VicHip) is part of a transformative effort in Victoria to improve the diagnosis and treatment of hip dysplasia. In this Grand Round, four VicHip team members will speak about their approach, which includes a streamlined process for clinicians, integrated data systems, and stakeholder engagement and research. If you’re a health professional, researcher or parent looking for more information, tools and publications about hip dysplasia, this session will be a valuable resource.

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The impact of a rare disease program on the Melbourne Children’s campus

Rare Diseases Now (RDNow) was established in 2019 with funding from The Royal Children’s Hospital Foundation to provide an advanced, clinically integrated diagnostic pathway for children with rare diseases (RD). We have delivered value to children and families by providing access to frontier multi-omics technologies, working on solutions to optimise rare disease care and upskilling the workforce.  In this Grand Round we will describe the impact of our work at the individual, team and national levels and show how the Melbourne Children’s Campus is positioned as a global leader in rare disease care.​

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14th Annual Bioethics Conference – The Ethics of Innovation

From the invention of the wheel, the telephone and the light bulb, to the first computer, innovation has been inextricably tied up with human curiosity and our tendency to think about and try new and better ways of doing things. In medicine, advances such as vaccine technology, the development of pharmaceuticals and data gathering and processing methods, to the completion of the human genome project, have impacted the health of generations, arguably for the better. Yet innovation raises important questions about who scientific “breakthroughs” serve and what values drive such “progress”. This presentation explores the relationship between bioethics and innovation. It considers the role of ethics in innovation and team science, and proposes a framework for a “bioethics of innovation” in paediatric research and practice. It concludes with a reflection on what doing “innovative bioethics” might entail.

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