Chloe Bennell was born with a rare genetic disorder. She is one of six children in Victoria with Prader Willi Syndrome, a condition that will leave her with life long physical and behavioural problems. Chloe needs regular human growth hormones injections to increase her muscle mass, she has severe hearing loss, needs to wear glasses, … Continued
He’s confident, happy, and rides a bike just like any other 13-year-old kid. But Dean Adams has done it tough. He was born with a rare disease that’s left him without stomach muscles. He was on a ventilator for the first two-and-a-half years of his life, and was 10 before he tasted food. Guess what … Continued
First she said she had a sore knee, and then bruises showed up on her legs. Maisie’s parents were shocked to learn their little daughter had leukemia. Now, it’s Maisie’s smile that is helping the family through tough times. Read more Photo courtesy of the Herald Sun.
Four-year-old Mikayla Weber was left unconscious when a 30kg television fell on her. She suffered head injuries and was rushed to the Royal Children’s Hospital in a critical condition. Doctors told her mother they didn’t know if there was anything they could do for her. See how far Mikayla has come. Read more
Sienna Fraser was born with two left kidneys; one was full of cysts and led to frequent infections. Surgeons at the Royal Children’s Hospital removed part of the troublesome kidney using a new instrument that works by creating vibrations. Read more Photo courtesy of the Herald Sun.
Leukemia patient Lexi Potter is one quiet, lonely child. The 2-and-a-half year old can’t go to the zoo, shopping centres or anywhere there are crowds. Even a trip to the park is only possible when all the other kids have gone home. Lexi has an aggressive form of cancer. Her immune system is fragile, and … Continued
Jackson Heit doesn’t know how to eat, doesn’t know when he is hungry, and has rarely tasted food. He’ll suck the salt off chips and chew bread, but won’t swallow. Read more Photo courtesy of the Herald Sun.
One year ago Gabriel Lowe was making weekly trips to the hospital for treatment for his rare genetic condition. He was born with no forearms, and only half his upper arms. But 12 months on, the toddler with the infectious smile is making huge strides. Read more Photo courtesy of the Herald Sun.
The Royal Children’s Hospital Good Friday Appeal today launched its special poster, which features 18-month-old cutie Isaac Jones. Isaac became a star at the RCH last year after undergoing surgery for a misshapen head. His head was growing disproportionally long and narrow – a condition known as scaphocephaly. The condition causes the sutures along the … Continued
Behind the big eyes and gentle smile lies a pioneering story. Isaac Jones was born with an irregular-shaped skull. And in a world first, surgeons at the Royal Children’s Hospital had to take his skull apart, resize it and put it back together again like a jigsaw puzzle. Read more Photo courtesy of the Herald … Continued
