When Josh* and his mum arrived in Australia earlier this year, everything felt new and overwhelming. Settling into a new country is challenging for any family, but even more so when your child has autism and an intellectual disability.

Only two months after landing, Josh began experiencing behaviours of concern. Unsure where to turn, his mum brought him to the RCH Emergency Department (ED).

At ED, a paediatrician listened carefully and connected the family with the RCH ISAID team, a multidisciplinary service supporting children with disability who are in crisis. ISAID Nurse Hannah called, listened, reassured, and made a plan. Over the next few weeks, the team wrapped around the family:

• A social worker connected Mum to carer supports, counselling and autism-specific information and peer assistance.
• A paediatrician reviewed Josh’s medication and sleep.
• The team helped arrange new assessments and immunisations, opening doors to school and other essential supports.

With a plan in place, things began to shift. Josh started sleeping through the night. His behaviour improved. They could finally leave the house for small outings, even learning to take public transport together. Soon after, Josh enrolled in a specialist school, where he’s now thriving.

Mum says the guidance she received changed everything, “I feel empowered with the knowledge I now have. I understand the services, I know my rights as a carer, and I can advocate for my child.”

“We don’t have to feel alone on this journey. The exhaustion and challenging behaviour can lead parents to the Emergency Department, and that’s exactly why ISAID exists. The support they provide gives families the chance to breathe, to plan, and to move forward.”

“Caring for a child with a disability is about giving them the chance to live a fulfilling life. Knowledge is power. Sometimes all we need is friendly guidance and reassurance to help us move onwards.”

On International Day of People with Disability, we celebrate the strength of families like Josh’s and the community that exists to support them along the way.

The ISAID program is generously supported by The Royal Children’s Hospital Foundation.

*Name has been changed for privacy.