The Melbourne Children’s Campus has a strong history of academic surgical excellence. As we make strides towards enhancing surgical collaborations, we aim to create a Surgical Research Program that will encourage and support all interested surgeons and surgical trainees.
Adolescent use of violence in the home (AVITH) refers to violence, or abusive or intimidating behaviours by a young person against their parent, carer, sibling or other family member within the home. The Victorian Family Violence Reform recognises violence used by young people as a distinct form of family violence, requiring unique responses to the inherent complexities of this form of family violence. I
The primary mitochondrial oxidative phosphorylation disorders are characterized by clinical and genetic heterogeneity, limited treatment options, and poor outcomes. Part of the complexity is because both the nuclear and mitochondrial genomes may be involved. Mitochondrial DNA is maternally inherited. From a reproductive counselling perspective, couples with a family history of mitochondrial DNA disease often have limited reproductive options available to them.
Very large, truly population-representative pregnancy cohorts are rare internationally. Generation Victoria (GenV) is a whole-state cohort targeting all newborns (~150,000) and their parents over 2 full years. Components include (i) families recruited soon after birth, (ii) biospecimens from pregnancy onwards, (iii) extensive data linkage supplemented by (iv) minimal GenV collected data, all enabling (v) many additional integrated research studies, both observational and interventional.
This session will describe a 10 year initiative to develop a data and evaluation platform for children and youth mental health and service delivery in Ontario, Canada’s largest province. The session will touch on the advantages and limitations of using routinely collected health system data for surveillance and performance measurement, and challenges in evaluating a large, system wide policy strategy to improve early identification and coordination of care for children and youth with mental health disorders.
The Melbourne Children’s Campus is a global leader for longitudinal and life course data. Being one of the few centres worldwide with such extensive longitudinal cohort studies, we are positioned to address an array of questions central to early life health and development and its progression throughout the life span.
Victoria’s newborn bloodspot screening (NBS) program commenced in 1966 with screening for phenylketonuria, and from the early 1970’s close to 100% of newborns were being screened. Improvements in analytical and genetic testing technologies saw the successive introduction of screening for congenital hypothyroidism, cystic fibrosis and 22 metabolic conditions. Today, Victoria’s NBS program detects about 80 babies per year with these conditions, preventing life-long debilitating outcomes and even death.
Trials typically report outcomes that lack relevance to patients and caregivers trying to make treatment decisions. Also, outcomes are often reported inconsistently which impairs evidence synthesis. Core outcome sets can address these important shortcomings with current trial outcomes by developing a set of outcomes to be routinely reported in all trials in a particular field.
The Royal Children’s Hospital Children’s Bioethics Centre has recently appointed the first Bioethics Clinical Nurse Consultant, Dr Jenny O’Neill. In this Grand Round, we introduce Jenny, and explore the role of the nurse ethicist and the value they can bring to a healthcare service. We will highlight the unique perspective that a nursing background brings to ethical deliberation and clinical ethics consultation.
Over recent years the number of children with advanced heart failure from cardiomyopathy and congenital heart disease receiving treatment has increased considerably. The Royal Children’s Hospital has been the nationally funded centre for heart transplantation in children for 30 years. The RCH heart failure program involves medical, surgical, nursing, allied health and biomedical technology. Successful management of severe heart disease in children requires a detailed understanding of the aetiology, likely disease trajectory and balancing an increasing number of treatment options.
