Research

Taking a lifelong perspective on Cerebral Palsy: Challenges and opportunities

Emma Livingstone, CEO of UP – The Adult Cerebral Palsy Movement, will share insights from her lived experience and advocacy work on the evolving care and understanding of cerebral palsy (CP) across the lifespan. Her presentation will explore recent research advancements, the lifelong nature of CP, and the importance of addressing co-morbidities. She will also discuss how child practitioners can better equip children with CP for adulthood.

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An evidence-based system for early years interventions to reduce child health and developmental inequities: Insights from the interventional birth cohort study Born in Bradford’s Better Start (BiBBS)

There are real challenges in delivering equitable health care in a community, even when there is policy and service goodwill. This is an issue for health services around the world. For the past ten years BiBBS has been working alongside service partners and families to co-design, implement and evaluate multiple early years interventions that are delivered as a part of usual practice in disadvantaged inner-city areas in the UK.

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Co-designing interventions for high quality paediatric health care

Opportunities exist to leverage implementation science and quality improvement science to advance quality care. During this presentation we will compare and contrast implementation science and quality improvement science. We will explore how methods from both fields have been used to improve our understanding of discharge communication practices in emergency departments in Canada.

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Genomics for the non-genomic specialist: Bridging the gap between innovation and everyday practice

Genomic medicine is rapidly evolving, yet many clinicians outside of clinical genetics face challenges in integrating these advances into routine practice. In this Grand Round, Associate Professor Catherine Quinlan explores her journey mainstreaming genomics in paediatric nephrology, using real-world data from Australia and Ireland and its implementation at The Royal Children’s Hospital.

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Celebrating International Day of People with Disability: Partnering in research

Healthy Trajectories is proud to bring a celebration of the International Day of People with Disability (IDPwD) to Grand Rounds at The Royal Children’s Hospital. In line with our vision for an inclusive Australia, we will share what we and others around the Campus have been doing to authentically involve young people growing up with a disability, and their families, as partners in research.

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Oxygen in the 21st century – 10 things you don’t know about a medicine we take for granted

Medical oxygen has been around for more than 200 years. It is a life-saving treatment we take for granted. Sadly this is not the case globally. The COVID-19 pandemic brought to the surface long-standing deficiencies. Images of patients gasping for oxygen reminded us that even today, 70% of patients who need oxygen globally do not receive it. How do we understand the different facets of this problem, and what can we do about it?

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Vernon Collins Oration: “The power of paediatrics to address child health inequity within a generation: reality or fantasy?”

There has never been a better time for children in the Australian policy world, with portfolios like health, social services, education, disability and treasury all sounding the importance of children for the nation’s wellbeing and growth. At the same time, almost every child health and developmental metric shows stable or growing inequities –preventable inequalities due to social, geographic or economic circumstances. What would it take to change the trajectory of Australia’s children and is it even possible?

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Early Births in Australia: Potential Implications for Child Health

The gestational age at birth in Australia has slowly but steadily declined over the past 30 years, mainly due to increase in planned births (caesarian sections, inductions of labor). The effects of this decline in gestational age to child health are evident at many levels – intensive care, paediatric care, community, and school.

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2024 Reddihough Symposium – Intellectual Disability: A Potentially Treatable Condition

The application of genomics has greatly increased the diagnosis of specific monogenic causes of intellectual
disability and improved our understanding of the neuronal processes that result in cognitive impairment.
Meanwhile, families are building rare disease communities and seeking disease-specific treatments to change
the trajectory of health and developmental outcomes for their children.

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