We are unleashing the power of data to improve child health. The first such Centre in Australia is a hive of potential and ideas, realising the shared vision of our campus partners. We are using data to advance and humanise many different perspectives of paediatric patient care.
Use of the internet and social media is now almost ubiquitous amongst adolescents. Parents express concern about their children’s use of social media and the risk of exposure to both unwanted and sought-after content, especially sexual content. Negotiating the digital world and understanding who their children are communicating with is becoming more difficult for parents.
Genetic conditions are the leading cause of death in children in high-income countries. Accurate and timely diagnosis is critical for being able to provide prognostic information and guide treatment, yet often takes many years.
Too often research evidence fails to inform practice or policy, and opportunities to improve children’s health and wellbeing are lost. The Melbourne Children’s Knowledge Translation and Research Impact Project, funded by the RCH Foundation, seeks to better understand campus KT and impact needs, and has developed and piloted strategies to advance knowledge translation, implementation and research impact.
Medulloblastoma is the most common malignant brain tumour of childhood. Despite multidisciplinary therapies offered by neurosurgery, radiation oncology and paediatric oncology through cooperative group clinical trials, there are significant late effects of therapy, including but not limited to neuroendocrine deficits, neurocognitive impairment and second malignant neoplasms
In this interactive and case-based session, the Children’s Bioethics Centre team will introduce the ethical idea of deciding with children, rather than ‘for’ them. We will briefly describe the ethical foundations of this idea, discuss what it means in practice, and why it matters.
A Stepped Care Approach to Developmental Care is a Royal Children’s Hospital Foundation funded project which aims to ensure that children referred with a developmental concern are seen by the right person in the right place at the right time. To achieve this a new Allied Health centralised intake team apply a stepped approach that identifies the child’s needs and pathway.
The Complex Movement Disorders program at the Royal Children’s Hospital commenced in 1997 and has evolved since then. It is currently funded by RCH Foundation and the fundraising efforts of A/Prof Andrew Kornberg’s Fly for the Kids event in 2017. The program allows coordinated multidisciplinary assessment and management of children with movement disorders and associated neurodevelopmental comorbidities.
The WHO’s World Hearing Day theme on 3rd March 2021 is ‘Hearing care for all: screen, rehabilitate, communicate’. The Royal Children’s Hospital is home to the Victorian Infant Hearing Screening Program (VIHSP) that has been delivering world-class universal hearing screening to Victorian babies for over a decade. Beyond screening, the RCH Audiology Clinic provides diagnostic care, and the Caring for Hearing Impaired Children (CHIC) Clinic delivers a multidisciplinary medical service that intersects with external audiology and early intervention services for hearing-impaired children beyond the hospital. Both VIHSP and CHIC are integrated with a childhood hearing loss research program at the Murdoch Children’s Research Institute to ensure evidence from research informs delivery of the best clinical care.
The Kidney Flagship is an RCH Foundation funded project which aims to reduce the burden of genetic kidney disease on patients and their families by improving diagnosis, treatment and developing new targeted therapies. In this Grand Rounds we will show how our work has already impacted on the care of children with kidney disease and our plans for the future.
