Health care recommendations for children with Down syndrome have undergone several significant changes in recent years and it is important for providers to be aware of the current guidelines. Patient examples illustrating some of the critical issues will be used in the presentation and time for general questions will be provided
The WHO’s International Classification of Functioning (ICF) was published in 2001. Advocates in the field of developmental disability have been promoting its use as an integrated and strengths-based approach to our thinking, actions, and research. Building on the ICF framework, colleagues at CanChild Centre in Canada published a tongue-in-cheek paper entitled “The F-words in Childhood Disability: I swear this is how we should think”.
School participation is vital for children with disabilities. We will describe the current situation for students with a disability who attend their local school in Victoria. Background and challenges that students, families and schools currently experience will be discussed. Findings from research that involved a study of students, teachers, parents, principals and allied health professionals will be presented to highlight supports, services, and strategies that enabled students with cerebral palsy to experience success at school.
Many gains have been made in treating hemiplegic cerebral palsy in recent years. These include a better understanding of diagnosis, imaging, risk factors and treatments.
Providing care for children with chronic and complex conditions is challenging. The clinical decision making is complicated and providing best care often means trying to join up services that have no natural connections in the current system, both within and outside RCH. We know our best attempts currently fall short of the needs of children … Continued
Dr Catherine D DeAngelis is Johns Hopkins University Distinguished Service Professor Emerita, Professor Emerita at the Johns Hopkins University Schools of Medicine (Pediatrics) and School of Public Health (Health Policy and Management), and Editor-in-Chief Emerita of JAMA, the Journal of the American Medical Association (2000-2011), serving as the first woman Editor in Chief.
There is growing evidence of the health effects caused by family violence ranging from fatal (homicide, suicide, maternal mortality) to non-fatal (physical health, mental health, chronic conditions, reproductive health issues, and negative health behaviours). Negative impacts of family violence on children are wide ranging and profound.
This session will cover some of our experience in this area through methods such as clinical practice guidelines but more importantly will challenge those who attend to think where we want to go with this concept in the coming years.
In Victoria, over 1000 children are hospitalised with constipation each year. Nearly all of these are in public hospitals and hospital costs related to just constipation are $1 million per year. 10% of these children have multiple admissions indicating a chronic condition.
This presentation, by the leaders of the campus partners will present why the campus structure must value add to each of our organisations, and why the integration of clinical care, research, education, and community engagement are paramount to our collective goals.
