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Synopsis: Increasingly, clinicians are encountering a new phenomenon, e-patients, those who seek to participate very actively in decisions about their healthcare and use mobile and social web technologies with sophistication to get health information.
Participatory health technologies include wearable sensors for self-quantification of physiological status (quantifiedself.org) and social networking sites for people to share their healthcare experiences and to analyse their shared health data as well (patientslikeme.com).Did your clinical communication or professional practice lectures prepare you for this?
Are there new information processing capabilities that clinicians need to deal professionally with this phenomenon? Practice guidelines and protocols in this area are beginning to emerge, but mainly to manage risk and protect reputation. More widespread educational leadership is needed to ensure that future clinicians are able to work ethically, efficaciously and efficiently with e-patients.
Speakers:
Kathleen Gray is a senior researcher in the Health and Biomedical Informatics Centre, The University of Melbourne (http://healthinformatics.unimelb.edu.au. Her current research activities are in the areas of:
• Patients’ and consumers’ use of web-based health information and communication
• Professional education for e-health
• Health sector change arising from new technologies, emerging high capacity broadband technologies in healthcare and biomedicine
• E-learning, assessment and evaluation in higher education and continuing professional development in health professions
Fernando Martin-Sanchez is Professor and Chair of Health Informatics at the Medical School and Foundational Director of the Health and Biomedical Informatics Centre. His current areas of research include:
• Informatics methods to facilitate personalised medicine (biomarker knowledge management systems, analysis of genomic data)
• Informatics methods in evidence-based participatory health (interventions with social media, self-quantification)
• Informatics platforms to advance translational biomedical research