{"id":8513,"date":"2020-12-17T13:09:06","date_gmt":"2020-12-17T02:09:06","guid":{"rendered":"https:\/\/blogs.rch.org.au\/news\/?p=8513"},"modified":"2020-12-18T10:39:36","modified_gmt":"2020-12-17T23:39:36","slug":"xaviers-rch-journey","status":"publish","type":"post","link":"https:\/\/blogs.rch.org.au\/news\/xaviers-rch-journey\/","title":{"rendered":"Xavier’s RCH journey"},"content":{"rendered":"

At 32-weeks pregnant, first-time parents Kathleen and Adam were faced with the terrifying news that there was something wrong with their baby\u2019s heart. An ultrasound had revealed that their growing baby was suffering from a congenital heart defect, after an otherwise happy and healthy pregnancy.<\/strong><\/p>\n

While Kathleen and Adam prepared for the arrival of their new baby Xavier, they met with a foetal cardiologist three times a week for an ultrasound to ensure that his arrival would be safe.<\/p>\n

Shortly after birth, Xavier was resuscitated and brought to The Royal Children\u2019s Hospital (RCH) via the Paediatric Infant Perinatal Emergency Retrieval (PIPER) service, where he remained on life support.<\/p>\n

Shortly after his arrival, various further health complications were discovered.<\/p>\n

Not only was little Xavier battling a debilitating heart condition, he was also faced with low blood sugar, a blood clotting deficiency, an overactive thyroid, and various other neonatal conditions.<\/p>\n

\u201cWe arrived at the RCH shortly after he was born on Easter Monday, right as the first COVID-19 restrictions had come in place, so it was a very anxious time for our family,\u201d said Xavier\u2019s dad, Adam.<\/p>\n

Xavier spent his first five days on the RCH\u2019s intensive care ward, Rosella, following complications after his birth, followed by two days on Butterfly, the RCH\u2019s neonatal unit.<\/p>\n

Following his stay in Rosella and Butterfly, Xavier arrived at the RCH\u2019s dedicated cardiac area \u2013 Koala ward \u2013 where he would spend a majority of his time within the hospital.<\/p>\n

\u201cKoala ward is a very special place for our family,\u201d said Adam.<\/p>\n

\u201cBeing around other families of children with heart complications on the ward, it really makes you realise that when you\u2019re a heart-kid parent, you become very in tune with what\u2019s going on with your child\u2019s health, because you\u2019ve seen them battle so much already.\u201d<\/p>\n

After a whirlwind first month of his life, Xavier was finally able to head home with his mum and dad.<\/p>\n

\u201cSince we arrived home in May of this year, Xavier has grown into a very happy and healthy baby,\u201d said Adam.<\/p>\n

\u201cHe\u2019s reaching all of his developmental milestones after some setbacks in his first few weeks of his life, and he’s even exceeding our expectations with some of them.<\/p>\n

\u201cYou\u2019d look at him now and never know what he had been through.\u201d<\/p>\n

After spending so much time in hospital, Xavier has become very comfortable with medical appointments, and enjoys spending time with doctors and nurses.<\/p>\n

\u201cHe loves his doctors and nurses now,” Adam said.<\/p>\n

“Any time he sees someone in dressed in PPE, he thinks someone is about to play with me, because of how kind the nurses were at the RCH.<\/p>\n

\u201cThe RCH is the reason we got to take home a healthy baby, and for that we are so grateful.\u201d<\/p>\n

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At 32-weeks pregnant, first-time parents Kathleen and Adam were faced with the terrifying news that there was something wrong with their baby\u2019s heart.<\/p>\n","protected":false},"author":189,"featured_media":8514,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8971,6],"tags":[],"class_list":["post-8513","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-in-the-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/8513","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/users\/189"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/comments?post=8513"}],"version-history":[{"count":10,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/8513\/revisions"}],"predecessor-version":[{"id":8530,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/8513\/revisions\/8530"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/media\/8514"}],"wp:attachment":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/media?parent=8513"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/categories?post=8513"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/tags?post=8513"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}