{"id":2625,"date":"2013-03-18T05:00:11","date_gmt":"2013-03-17T18:00:11","guid":{"rendered":"https:\/\/blogs.rch.org.au\/inthenews\/?p=2625"},"modified":"2015-04-29T13:42:43","modified_gmt":"2015-04-29T03:42:43","slug":"josh-sets-an-example","status":"publish","type":"post","link":"https:\/\/blogs.rch.org.au\/news\/josh-sets-an-example\/","title":{"rendered":"Josh sets an example"},"content":{"rendered":"<p><a href=\"https:\/\/blogs.rch.org.au\/news\/2013\/03\/18\/josh-sets-an-example\/josh-2d\/\" rel=\"attachment wp-att-2631\"><img loading=\"lazy\" decoding=\"async\" class=\"size-thumbnail wp-image-2631\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2013\/03\/Josh-2d-210x160.jpg\" alt=\"\" width=\"210\" height=\"160\" \/><\/a><\/p>\n<p>Josh McLean, 11, suffers from a rare disease known as chuvash polycythaemia. Josh is the only Australian, and one of few in the world, who has this genetic condition whereby too much blood is being produced that\u2019s too thick, risking clots and stroke.<\/p><\/div>\n<p>Josh was five-years-old when his diagnosis was first discovered after a bike crash. Two years\u2019 of testing at The Royal children\u2019s Hospital (RCH) followed. \u201cIf the body\u2019s being starved of oxygen, which is what Josh\u2019s cells are telling his body, the body compensates by increasing the number of red blood cells,\u201d said RCH haematologist Chris Barnes.<\/p>\n<p>Josh has his blood drained every three months. He will also take a blood pressure-lowering drug and have drug therapy to slow blood cell production in his bone marrow for life.<\/p>\n<p>\u201cThe nurses joke they want to take a video of him having his blood drained to show older kids how to behave. He\u2019s an amazing kid. You can\u2019t stop him,\u201d said mother Lisa McLean.<\/p>\n<p>Donate to The Royal Children\u2019s Hospital Good Friday Appeal at <a title=\"Good Friday Appeal\" href=\"http:\/\/www.goodfridayappeal.com.au\/\" target=\"_blank\">goodfridayappeal.com.au<\/a>\u00a0or phone 9292 1166.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Josh McLean, 11, suffers from a rare disease known as chuvash polycythaemia. <\/p>\n","protected":false},"author":41,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[7198,6],"tags":[],"class_list":["post-2625","post","type-post","status-publish","format-standard","hentry","category-good-friday-appeal","category-in-the-news"],"acf":[],"_links":{"self":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/2625","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/users\/41"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/comments?post=2625"}],"version-history":[{"count":4,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/2625\/revisions"}],"predecessor-version":[{"id":4914,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/2625\/revisions\/4914"}],"wp:attachment":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/media?parent=2625"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/categories?post=2625"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/tags?post=2625"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}