{"id":10387,"date":"2024-06-17T16:30:56","date_gmt":"2024-06-17T06:30:56","guid":{"rendered":"https:\/\/blogs.rch.org.au\/news\/?p=10387"},"modified":"2024-06-27T09:00:33","modified_gmt":"2024-06-26T23:00:33","slug":"aarna-the-heart-hero","status":"publish","type":"post","link":"https:\/\/blogs.rch.org.au\/news\/aarna-the-heart-hero\/","title":{"rendered":"Aarna the heart hero"},"content":{"rendered":"<p><span data-contrast=\"auto\">602.<\/span><span data-contrast=\"auto\">That\u2019s how many days two-year-old Aarna spent in Koala, The Royal Children\u2019s Hospital\u2019s cardiac ward.<\/span><\/p>\n<p><span data-contrast=\"auto\">That means, the toddler has spent most of her life in hospital, until now.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-10389 alignleft\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-187x280.jpg\" alt=\"\" width=\"187\" height=\"280\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-187x280.jpg 187w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-373x560.jpg 373w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-768x1152.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-1024x1536.jpg 1024w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-1365x2048.jpg 1365w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2248-scaled.jpg 1707w\" sizes=\"auto, (max-width: 187px) 100vw, 187px\" \/><\/p>\n<p><span data-contrast=\"auto\">In May 2022, at around eight-weeks-old, Aarna fell ill and was rushed to her local emergency <\/span><span data-contrast=\"auto\">department in Sydney. She had cardiomyopathy.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cIn simple words, her left side of her heart was not working properly,\u201d Aarna\u2019s parents, Neha and Gourav explained.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">At six months, Aarna was transferred to the RCH, where she underwent heart surgery, but unfortunately it didn\u2019t help and eventually Aarna\u2019s family were told she would need a new heart.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cShe was the queen of Koala ward and knows all the nurses by name in Koala,\u201d Neha said.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><span data-contrast=\"auto\">The strong and determined two-year-old certainly made a name for herself.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cShe knows exactly what she wants and she is very loud and clear!\u201d her parents said.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Throughout her time in Koala, Aarna and her family marked many milestones, forging close bonds with the staff who looked after them.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cWe are very grateful for exceptional support medically and emotionally throughout our journey,\u201d her parents recalled.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cThey celebrated\u202four Hindu festivals with us like Diwali and Holi and we never felt that we are not celebrating it with our friends and family. <\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">&#8220;They ensured\u202fwe didn&#8217;t\u202ffeel homesick, especially during those times.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">&#8220;The RCH has a great team of doctors, nurses and allied staff. It is only because of them it would have been possible to survive such a long time in the hospital.\u201d<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">After undergoing a heart transplant and lengthy recovery Aarna\u2019s family were told, she was ready to leave the RCH.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cWe were very happy as we waited very long for this day and at the same time very emotional as we were very close to all the nurses and carers,\u201d her parents said.<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cKoala is like our family. <\/span><span data-contrast=\"auto\">We had so many celebrations together and also faced so many challenges together.\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cWe all got so emotional when we saw so many people come to say goodbye.\u201d<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">On the day of her discharge, the ward was packed with staff and friends, as Aarna was wheeled out of Koala for the last time.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cIt felt like the entire hospital was there to say goodbye to her,\u201d Neha and Gourav said.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cAlmost\u202feveryone including\u202fus was crying as everyone including doctors, all the Koala Nurses, VAD team, Aarna&#8217;s care team, support staff were waiting for that day.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cWe are grateful to RCH for taking such good care of Aarna and especially that day is engraved in our hearts forever and we will never forget that.&#8221;<\/span><\/p>\n<div class=\"gallery gallery-10387-1\"><div class=\"row gallery-row\"><div class=\"col-sm-3 col-lg-3\"><a class=\"thumbnail img-thumbnail rl-gallery-link\"  href='https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-scaled.jpg' title=\"\" data-rl_title=\"\" data-rl_caption=\"\" data-rel=\"lightbox-gallery-1\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"533\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-800x533.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-800x533.jpg 800w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-400x267.jpg 400w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-768x512.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-1536x1024.jpg 1536w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2269-2-2048x1365.jpg 2048w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/a><\/div><div class=\"col-sm-3 col-lg-3\"><a class=\"thumbnail img-thumbnail rl-gallery-link\"  href='https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-scaled.jpg' title=\"\" data-rl_title=\"\" data-rl_caption=\"\" data-rel=\"lightbox-gallery-1\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"496\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-800x496.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-800x496.jpg 800w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-400x248.jpg 400w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-768x476.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-1536x953.jpg 1536w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2296-2048x1270.jpg 2048w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/a><\/div><div class=\"col-sm-3 col-lg-3\"><a class=\"thumbnail img-thumbnail rl-gallery-link\"  href='https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-scaled.jpg' title=\"\" data-rl_title=\"\" data-rl_caption=\"\" data-rel=\"lightbox-gallery-1\"><img loading=\"lazy\" decoding=\"async\" width=\"719\" height=\"560\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-719x560.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-719x560.jpg 719w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-360x280.jpg 360w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-768x598.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-1536x1196.jpg 1536w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/0T2A2224-2048x1595.jpg 2048w\" sizes=\"auto, (max-width: 719px) 100vw, 719px\" \/><\/a><\/div><div class=\"col-sm-3 col-lg-3\"><a class=\"thumbnail img-thumbnail rl-gallery-link\"  href='https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-scaled.jpg' title=\"\" data-rl_title=\"\" data-rl_caption=\"\" data-rel=\"lightbox-gallery-1\"><img loading=\"lazy\" decoding=\"async\" width=\"420\" height=\"560\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-420x560.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-420x560.jpg 420w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-210x280.jpg 210w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-768x1024.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-1152x1536.jpg 1152w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-1536x2048.jpg 1536w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7803-scaled.jpg 1920w\" sizes=\"auto, (max-width: 420px) 100vw, 420px\" \/><\/a><\/div><\/div><div class=\"row gallery-row\"><div class=\"col-sm-3 col-lg-3\"><a class=\"thumbnail img-thumbnail rl-gallery-link\"  href='https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-scaled.jpg' title=\"\" data-rl_title=\"\" data-rl_caption=\"\" data-rel=\"lightbox-gallery-1\"><img loading=\"lazy\" decoding=\"async\" width=\"747\" height=\"560\" src=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-747x560.jpg\" class=\"attachment-large size-large\" alt=\"\" srcset=\"https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-747x560.jpg 747w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-373x280.jpg 373w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-768x576.jpg 768w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-1536x1152.jpg 1536w, https:\/\/blogs.rch.org.au\/news\/files\/2024\/06\/IMG_7846-2048x1536.jpg 2048w\" sizes=\"auto, (max-width: 747px) 100vw, 747px\" \/><\/a><\/div><\/div><\/div>\n<p><em>With thanks to Aarna\u2019s family for sharing their story.\u00a0\u00a0<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>602.That\u2019s how many days two-year-old Aarna spent in Koala, The Royal Children\u2019s Hospital\u2019s cardiac ward. That means, the toddler has spent most of her life in hospital, until now.<\/p>\n","protected":false},"author":6846,"featured_media":10400,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8971,6],"tags":[26958],"class_list":["post-10387","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-in-the-news","tag-patient-story"],"acf":[],"_links":{"self":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/10387","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/users\/6846"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/comments?post=10387"}],"version-history":[{"count":4,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/10387\/revisions"}],"predecessor-version":[{"id":10398,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/posts\/10387\/revisions\/10398"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/media\/10400"}],"wp:attachment":[{"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/media?parent=10387"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/categories?post=10387"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.rch.org.au\/news\/wp-json\/wp\/v2\/tags?post=10387"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}