RCH in the news

RCH lobbies for ban on quad bikes

William Davidson, 3, with his father Scott, sustained severe injuries after being crushed by a quad bike.

William Davidson, 3, with his father Scott, sustained severe injuries after being crushed by a quad bike.

The Royal Children’s Hospital (RCH), together with Ambulance Victoria, The Royal Australasian College of Surgeons, KidSafe and the Australian Medical Association, is calling for legislation to restrict the use of quad bikes for children under the age of 16.

Quad bike injuries in children have doubled in the past decade, and tragically 11 children under the age of 15 have died on quad bikes nationwide since 2008.

RCH Trauma Service Manager, Helen Jowett, said the statistics were horrifying.

“In the past ten years, the RCH has seen serious trauma cases from children’s quad bike accidents grow by about 25 per cent each year,” Helen said.

“The injuries to these children are severe: intracranial head and brain; skull and face fractures; chest, abdomen and spinal injuries,” she said.

Just three weeks ago, three-year-old William Davidson was crushed by a quad bike on his family’s farm after the bike continued to move when switched off. William was placed in an induced coma and rushed to the RCH were he spent eight days in intensive care.

Associate Professor Trevor Duke, RCH Intensive Care Unit Deputy Director, says William’s story is no different to those of other children critically injured by quad bikes.

“The circumstances may vary, from one child moving cows, some bikes rolling downhill, some crashing into gates or poles or other motorbikes. Most occur off-road or on private properties. What doesn’t vary is the distress the accidents cause the child, their family, and clinicians who care for them,” A/Professor Duke said.

RCH staff from intensive care, orthopaedics, trauma, and the Safety Centre are all seeking legislation to ban the use of quad bikes by children as well as regulation insisting safety gear, such as helmets, be worn at all times.

“For children on private properties there’s no law. Obviously we would like to see everybody wearing a helmet at all times, but for children under 16 there is no law for them to be on or off quad bikes or even wearing a helmet,” Helen Jowett said.

Helen said change would also need to occur at a community level.

“The problem in the community is that people think quad bikes are safe.

“Currently we see children as young as 18 months up to 16 years coming in injured from quad bikes and it is something that we would like to see changed.

“Our concern is the lack of community awareness. Quad bikes are unstable if not ridden appropriately by the instructions and if not adhered to when carrying people on them, and we don’t believe children have the ability to control such heavy vehicles,” she said.

Also see: RCH Opinion: Quad bikes are unsafe for children

RCH Opinion: Quad bikes are unsafe for children

Associate Professor Trevor Duke, RCH Intensive Care Unit Deputy Director

Associate Professor Trevor Duke, RCH Intensive Care Unit Deputy Director

In the past three weeks a teenager in Victoria was tragically killed while riding a motorbike on a farm, and two others were critically injured in separate incidents on quad bikes and motorbikes, both on farms, not wearing helmets. In the years we’ve worked in The Royal Children’s Hospital (RCH) Intensive Care Unit (ICU), motorbike and quad bike injuries have increased.

The injuries are often horrific and have resulted in two deaths in Victoria in the past two years. In the last two years there have been 18 children admitted to the ICU in Melbourne with severe trauma from motorbikes or quad-bikes. Last year the injured victims in Victoria included a toddler as young as two years of age, and there were two quad bike-related deaths in New South Wales and Queensland, and one in South Australia.

The circumstances vary, from one child moving cows, some bikes rolling downhill, some crashing into gates or poles or other motorbikes. Most occur off-road or on private properties. What doesn’t vary is the distress the accidents cause the child, their family, and clinicians who care for them.

These cases highlight several major issues that result in death and injury in Victorian children. First, the use of motorised vehicles (quad bikes, motorbikes, tractors) by children off-road for recreational purposes who are inadequately supervised; second, injuries when children are assisting with farm work; and thirdly the lack of legislative protection for children involved in the inappropriate use of vehicles on private property.

It goes without saying that young children have no place on quad-bikes. But even older children and adolescents using bikes for recreational purposes or work often do not have the strength, coordination or maturity to use such vehicles safely. Some injuries occur from impulsivity and bravado, especially in older children, and many from lack of adult supervision of young children. Many other circumstances are just accidents waiting to happen.

It is too common for children to be injured or killed by farm vehicles or other equipment while working or accompanying their parents. Several children, some of pre-school age, are admitted to the RCH each year after being seriously injured in such circumstances – with head injuries, multiple fractures or internal trauma.

Why is the safety of children assisting on family farms after hours or on weekends given less priority than safety for employees in other workplaces? Children are not permitted to be in other workplaces where there are any physical dangers without appropriate precautions and attention to work-place safety regulations. The same rules should apply on farms.

There is a lack of legislation to protect children from using motorised vehicles off-road and on private properties. Currently there is no requirement for a rider of a quad bike or motorbike on private property to wear a helmet or be of a minimum age. Adults should not allow unlicensed or inappropriate use of motorised vehicles and, when used by children of an appropriate age, the safety precautions used on roads – helmets and protective clothing – should also be observed off-road. Farmsafe Australia has valuable information for parents on child safety on farms.

We should do better at protecting children in Victoria. The laws should be looked at, and adults and communities need to take responsibility so that children are not allowed to be in harm’s way, and to ensure the same safety precautions that are legislated for roads and workplaces should apply to vehicles and equipment on rural properties. Concerns over individual rights and freedoms while on private property should not be allowed to get in the way of our duty to protect children.

Professor Trevor Duke
Deputy Director, RCH Intensive Care Unit

Written in conjunction with: Associate Professor James Tibballs, RCH Intensive Care Unit Deputy Director; Mr Russell Taylor, RCH Trauma Service Director; Professor Kerr Graham and Dr Michael Johnson, RCH Department of Orthopaedic Surgery; and Barbara Minuzzo, RCH Safety Centre.

Also see: RCH lobbies for ban on quad bikes

Boori Monty Pryor’s compelling storytelling

RCH patients Jacob and Oliver with Boori Monty Pryor

Much loved Australian children’s author and Australian Children’s Laureate, Boori Monty Pryor, visited The Royal Children’s Hospital (RCH) today to run a storytelling workshop with patients.

The session was coordinated by the RCH Education Institute and included readings of Boori’s popular books to children and families in the hospital.

The visit comes in time to help RCH patients plan their inaugural Jumbunna Film Festival (Jumbunna is the Woi Wurrung word for storytelling form the Wurundjeri people). The children and young people in the hospital will coordinate all aspects of the festival, from event management, promotion and publicity to the writing, directing and editing of films.

Boori’s visit was sponsored by the State Library of Victoria and Australian Children’s Literature Alliance.

Brave Laura is back in action

Laura Davoli and her friends at St Therese's School. Photo: courtesy Herald Sun.

Laura Davoli and her friends at St Therese’s School. Photo courtesy of the Herald Sun.

The shock of losing both her legs to a rare bacterial infection hasn’t stopped brave Laura Davoli from smiling, nor has it slowed her down.

Seven-year-old Laura undestands that the amputation was a last resort. Diagnosed with streptococcal infection group A in October, a seriously ill Laura was treated at The Royal Children’s Hospital (RCH). She suffered two cardiac arrests and was hooked up to a heart-lung machine, while her body was pumped with antibiotics.

The doctors didn’t know if Laura would survive the septic shock caused by the infection, which cut the blood supply to her limbs and required the amputation of both legs.

But the remarkable girl pulled through, showing strength and resilience. Laura’s mother Sharon Davoli is encouraged by her daughter, who has only shed a single tear since the amputation.

“There is something very special about her – we draw strength from her,” Mrs Davoli said.

Laura has slipped back into life easily, returning to school and getting straight back into sport. Her parents are grateful to the Intensive Care team at the RCH and the school community.

Olympic champion honours son with gift to the RCH

Alisa and Oliver Warner-Camplin present $20,000 to Assoc Prof Steve Horton, head of Perfusionist team and Sue Hunt, Executive Director of the RCH Foundation

Alisa and Oliver Warner-Camplin present $20,000 to Assoc Prof Steve Horton, head of Perfusionist team and Sue Hunt, Executive Director of the RCH Foundation

In memory of their son Finnan, Alisa and Oliver Warner-Camplin have donated $20,000 to the RCH Perfusion Department, recognising the crucial role the team has in caring for on our most fragile children.

“Finnan spent most of his short life under the care of the Perfusion Department. Everyone needs to know how important these amazing scientists are to cardiac patients and their families,” Alisa said.

“The RCH Perfusion Department are leading edge, so we know that Finnan received the greatest possible medical care in the world. We just want to help them get better and better,” she said.

The money has been raised through community fundraising following the establishment of Finnan’s Gift Grant in 2011.

This gift will enable the RCH Perfusion Department to develop a new monitor that uses light to determine blood supply and oxygen to the brain, as well as other organs. Until now, this technology has only been available overseas.

“Alisa and Oliver’s vision for Finnan’s Gift is clear; to make a real difference to the lives of other children and families who are faced with congenital heart disease,” said Sue Hunt, Executive Director of the RCH Foundation.

“The RCH is fortunate to have an outstanding workforce that is supported by a generous community. Donations such as Finnan’s Gift Grant really do help our staff provide world-class care,” she said.

Finnan Maximus Camplin-Warner was diagnosed in-utero with congenital heart disease (CHD) in 2011 and passed away at just 10 days old.

The Finnan’s Gift Grant fundraising project was set up by Alisa and Oliver to honour their son and raise awareness for CHD, which is the leading cause of death in young children in Australia.

New research position to solve the paediatric plastic surgery puzzle

Jigsaw

Professor Tony Penington, Jigsaw Foundation Chair of Pediatric Plastic and Maxillofacial Surgery, with patient Trishna Mollik and her guardian, Atom Rahman.

The future for patients requiring plastic and maxillofacial surgery at The Royal Children’s Hospital, Melbourne (RCH) is looking even brighter with the establishment of ‘The Jigsaw Foundation Chair of Paediatric Plastic and Maxillofacial Surgery’, announced today.

University of Melbourne Professor and RCH plastic surgeon Tony Penington has been appointed the inaugural The Jigsaw Foundation Chair of Paediatric Plastic and Maxillofacial Surgery – a position made possible through the advocacy of the Jigsaw Foundation. 

Professor Penington will lead a clinical research program that will influence plastic surgery practice ensuring patients across Australia and internationally receive the highest level of care.

The position is a joint appointment with The University of Melbourne Department of Paediatrics, the RCH and the Murdoch Childrens Research Institute.

The RCH department of Plastic and Maxillofacial Surgery is already a clinical leader both in Australia and internationally in multiple areas of practice, including cleft and craniofacial surgery, congenital hand deformities, facial palsy, ear reconstruction and the treatment of vascular anomalies.

The department received international acclaim for its contribution to the successful separation of formerly conjoined twins Trishna and Krishna in 2009.

RCH CEO Professor Christine Kilpatrick says the instalment of the academic Chair will further enhance patient care.

“Clinical research and the constant evaluation of how we deliver care play large roles in improving clinical outcomes for our patients,” Professor Kilpatrick said.

“Not only will the research lead to evidence-based changes in plastic surgical approaches, but also innovations that benefit patients right across the hospital and the potential to inform health planning at a state and national level,” she said.

The esteemed position transpired thanks to the advocacy and contribution of the Jigsaw Foundation, and generous funding from the RCH Foundation, and the Federal and State governments, totalling $15 million.

The funds will support the permanent Chair position along with additional staff and infrastructure required to undertake research activities.

The Jigsaw Foundation Chair of Paediatric Plastic and Maxillofacial Surgery, Professor Tony Penington, says he is looking forward to his new challenge.

“The Jigsaw and The Royal Children’s Hospital foundations, and the State and Federal governments are investing in the idea that medical research has the capacity to transform the lives of children who suffer from deformity and disease,” Professor Penington said.

“The children who come under our care deserve not only the best care we can give them today, but the hope for a better future that only medical research can provide.

“At the Murdoch Childrens Research Institute, exciting research is going on today, especially in the area of genomics, that in the next few years will lead to changes in the way we understand disease, and that will lead to new and better treatments.  I am very excited about what can be achieved,” he said.

Riccardo is all smiles thanks to surgeons at the RCH

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Riccardo Duke smiles brightly thanks to surgeons at the RCH. Photo courtesy of the Herald Sun.

Thanks to the work of surgeons at The Royal Children’s Hospital (RCH), there is little trace of three-year-old Riccardo Duke’s congenital mouth defect.

Riccardo’s cleft lip and palate was discovered while still in utero, during his mother’s 20 week scan. The new mother, Maria, was distraught to learn that her first baby would be born with what was described as a hole in his face.

Two weeks after his birth, Riccardo was seen by RCH Craniofacial plastic surgeon Dr David Chong. Dr Chong and medical staff at the RCH have revolutionised the way cleft lip and palates are repaired, by using a highly planned and exacting technique that requires accuracy down to the millimetre.

So revolutionary is this technique that it has garnered interest throughout the world, attracting the attention of American and Canadian surgeons who have visited the RCH to learn how to perform the procedure.

Riccardo is part of a growing generation of children whose facial defects are almost invisible as a result of this new technique. The happy little boy, who doctors had expected would experience speech difficulties, has no such issue and doesn’t stop talking until he closes his eyes to go to sleep.

Happy Tayla is a regular at the RCH

Tayla makes regular trips to the RCH from Ararat to treat her cystic fibrosis. Photo courtesy of the Herald Sun.

Two-year-old Tayla Sladdin is all smiles. The bubbly toddler is a ‘frequent flyer’ at the Royal Children’s Hospital (RCH). Diagnosed with cystic fibrosis at birth, Tayla needs specialist help every few months to keep her lungs clear and functioning.

Cystic fibrosis is an incurable genetic disease where organs, especially the pancreas and lungs, are clogged with thick, sticky mucous.

Tayla’s nine-month-old brother Thomas also has the disease, meaning that visits to the RCH are common for the Ararat family, as both children need regular “tune-ups”.

But little Tayla doesn’t mind the two and a half hour drive into Melbourne, she loves the hospital and starts screaming with joy when the she sees it in the distance.

Every three months Tayla needs a strong course of intravenous antibiotics, meanwhile, a strict regime physiotherapy and exercise keeps her lungs strong and healthy.

Although it is difficult to have two children with the disease, the small touches and attention from the staff at the RCH, make a big difference to the Sladdin family.

Click here for more stories and pictures of the RCH Good Friday Appeal.

Cooper takes joy in the simple things

Cooper takes pleasure in splashing around in a swimming pool. Photo courtesy of the Herald Sun.

Chasing his older brother Mitchell and playing around in the swimming pool are two things that bring joy to five-year-old Cooper Anderton. However, his body will become weak and tired well before other kids his age.

Mum Donna says that he has always been slower than other children. When Cooper was three he desperately wanted to learn to ride his bike, but couldn’t push the pedals. This is when she knew that her son was not just lazy, and that there was something wrong.

Following a blood test it was confirmed that Cooper had Duchenne Muscular Dystrophy (DMD). Children usually lose the ability to walk at the age of 12, and eventually their breathing muscles are affected. Ms Anderton and husband Matthew have found comfort in RCH’s neuromuscular clinic, which has about 450 children on its books, and 250 with DMD.

After running and activity, Cooper’s muscles do not repair and grow stronger as they usually should. “In DMD, that normal pathway of muscle regeneration is affected, and the loss and tear of muscles instead causes connective tissue to be replaced that seizes instead of contracting in the same way,” says clinic Associate Professor Monique Ryan.

Cooper will soon be participating in two studies through the clinic. The first will investigate the use of natural supplements in reducing the decline of bone density and muscle strength. Associate Prof Ryan will run the second one, which will be a long-term study focusing on whether other underlying medical problems are caused by a particular deletion in the child’s genetic code.

The clinic hopes to follow in the footsteps of childhood leukaemia in combining results to lead to better treatments. To achieve this, they hope to have every child at the clinic involved in a clinical trial.

“When I started, boys lived until they were about 20-25 years. Now they live to 30-35 years,” says Associate Prof Ryan.

Cooper has been receiving steroids to assist in increasing lost muscle mass, allowing him to be able to run and jump. Ms Anderton says, “He is now able to run to a degree in his own way. He can jump. To see his own two feet come off the ground an inch – it’s on Facebook, it was on YouTube – I told everybody.”

Ms Anderton has further said that the neuromuscular clinic’s compassion, prompt phone calls and emails are typical of the RCH’s neurology clinic. “As much as it’s devastating to be told that all your hopes and dreams for your boy are not going to be what you envisaged, you know they’re there for you…it feels like they’re a family team supporting you.”

Nicholas’ night terrors

Nicholas undergoes brain monitoring at the RCH. Photo courtesy of the Herald Sun.

For five years, the prospect of peaceful slumber has been out of arms reach for Nicholas Kontogeorgis and his mother, Julie.

The five-year-old has been plagued by night terrors that would wake him up to 10 times a night. The episodes leave Nicholas exhausted by the afternoon and cause anxiety at kindergarten  His mother, who sleeps in the same room as her son to ease his anxiety, is similarly exhausted and desperate to find a solution.

Last week, Nicholas was admitted to The Royal Children’s Hospital (RCH) to undergo five days of brain monitoring.  Nicholas was hooked up to a video EEG recording unit, attached by electrodes glued to his head.

Given his history of epilepsy, doctors first imagined the night terrors to be caused by seizures. However, the week of monitoring showed that Nicholas suffers from a sleep disorder called parasomnia.

Nicholas has now been referred to a sleep specialist and his mother Julie is hopeful that new treatment will help her son return to a normal routine.

Click here for a gallery of photos from The Royal Children’s Hospital Good Friday Appeal on the Herald Sun website.